The focus group questions (Table 4) were developed from the literature review and input from the advisory group and research team.
Table 4: Focus Group Questions
No. | Question |
|---|---|
| 1 | Put up slide one with control report and ask the participants: |
| 1.1 | Looking at the presented results – which would make you think that something needed to be done? |
| 1.2 | If you were given this would it make you think that you may need more medication or insulin? |
| 1.3 | Are you normally aware if your result is out of target – does the doctor discuss this with you? Do you think these reports would help with that discussion? |
| 1.4 | If you received this report would it make you ask your doctor about increasing your medication? Would it help you seek help about diet and activity? |
| 2 | Ask participants to think back to the first time they (or their family member) were told they had diabetes. |
| 2.1 | What information were they given about their test results? |
| 2.2 | Did they understand the results? |
| 2.3 | What form was it in? |
| 2.4 | Was it helpful to get information about their results in this way? |
| 2.5 | What do you know about diabetes? Is this information enough? |
| 2.6 | What do you need to know more in order to be able to manage the condition? |
| 2.7 | What information are you provided with after every test (regular blood sugar test)? |
| 2.8 | What do you need to know more at every test (regular blood sugar test)? |
| 3 | Go through the set of slides: repeat the idea of the questions from 1.1 to 1.4 above in different words. |
| 4 | For the slide with the 4 conditions ask the participants: |
| 4.1 | What worries them? Worries them the most? |
| 4.2 | What will they act on? |
| 4.3 | How do they think the chances of getting these conditions relate to their blood test results? |
| 4.4 | Would seeing these conditions cause them to be more or less likely to act? |
| 5 | Have the following general discussion before putting up the final 2 prototypes: |
| 5.1 | Would you like to receive verbal or written information? Or how do you prefer to receive information? |
| 5.2 | In what formats do you prefer the information to be presented? |
| 5.3 | What information do you prefer to be included in the report? |
| 5.4 | Refer back to the types of information you have looked at so far, how do you prefer each type of this information to be presented? |
| 5.5 | Imagine that the doctor tells you to cut down on fat, eat more fruit, and to try to exercise more regularly. Is this advice specific enough? |
| 5.6 | If your blood tests suggest you need to take action, What would you like to know about:
a. Medication (perhaps name, dosage, frequency, effects, side-effects, cost) |
| 6 | Display the two prototypes and ask the participants: |
| 6.1 | What do you think about these prototypes? Which one is better and why? |
| 6.2 | What parts of the prototypes do you like? |
| 6.3 | What information is missing? |
| 6.4 | What information is not necessary to be included? |
| 6.5 | Ask again the questions from 1.1 to 1.4 above in different words |
| 7 | Final general discussion: How do you think the reports should be presented? |
| 8 | Cultural issues’ questions: |
| 8.1 | Would you like your own photo on the report? |
| 8.2 | Do you like to include pictures of other people in the report? If yes, which type of pictures (female or male pictures or both)? |
| 8.3 | Do you prefer to receive the report in your native language? |
| 8.4 | Are there any words related to your disease you do not like to be used in the report? |
| 8.5 | Do you normally see your doctor alone or with someone else? How does that influence the way you understand information? |
| 8.6 | How do you like the idea of printed material to take home to share with your lovely ones? |
| 8.7 | How does the disease influence your personal life? |